Just a quick one to say, scan results were good. Nothing significant found in site of tumour and they've recommended a total of 6 cycles to mop up any renegade cells in my body. Hurrah! Due to the scar tissue in the area they're being extra careful though and we'll have our proper chat with the consultant week after next to chat through exactly where we stand and what the area now looks like. But relieved that treatment is working and feeling more confident I could be in remission by end of May.
Other good news is that this cycle has been so much easier in comparison to the last one. I still have had nausea but we gave one of the drugs v.v.slowly as it has caused a lot of stinging last time, and my symptoms were drastically reduced. I even managed to sit up and chat with my sister and Ray for a bit last night and have a bath. Amazing as I am normally extremely sick for first 24 hrs. So relieved.
So thanks for those of you who are praying,really feeling Grace of God and in His hands.
Ps still no news on critical care money, pls keep praying we'll at least know outcome soon as tricky planning Ray's time off/compassionate leave. Thanks.
Saturday 12 March 2011
Tuesday 8 March 2011
here comes the sun...
Been loving the sunshine down here since I posted last. There have been moments when it has felt like Spring out on Mum and Dad's patio, so been feeling excited as I'm still hoping that I'll be through the chemo by May.
We've been doing pretty well still. Managed to see some people this cycle which has been nice as otherwise it is just me and the family. Also saw some family over the last few weeks which Millie has loved too. Had v.low white blood cell count the last two cycles which is good as it means chemo is working, but also not great as basically have very week immune system for about 5 days. Drs were debating giving me injection of white cells to help boost mine but I managed to cope on my own and just was very careful with visitors and going out.
Symptoms have been ok, just the usual finger issues. The Dr has checked out the nerve damaged and warned me it may be permanent which is annoying as it is like extreme pins and needles at the tips of my fingers. It has just been an inconvenience so far but now they've started throbbing I'm hoping I can still get all the chemo as they may have to reduce one of the drugs even further to try and control the damage. Prayers that the throbbing stops would be great. Nausea was pretty normal and after a week was able to eat what I wanted, which is good as dinner is a bit of a mission the first week.
I should know tomorrow the results of my scan to see how the tumour is doing - we're hoping it is gone or reduced. Have found it unsettling waiting. I think it is partly as they may up my sessions to 8 in total if they are not getting it. I've been focusing on getting to May and not entirely sure I have it in me to do another 5 instead of 3. I had a CT scan last week and I've felt worried at times and not sure how to wait well. Think it was also partly because Ray had holiday but he spent 5 days away from us in our new house very tirelessly sanding the flooring in our new lounge. He did SO well, it was a tough job and he single handedly managed to get it done! But it happened to coincide with me feeling a bit rubbish so didn't help. Have felt a lot better now he's back home and I am feeling more prepared for tomorrow. Probably partly because I didn't have my usual splurge before I slept each night he was away so I was backlogged :)
We're still waiting to hear about critical care money which will help us plan the final cycles and whether we can afford for Ray to take some compassionate leave. It would be good to try and have some "normal" family time around Easter and as my last cycle is currently due to be 22nd April, it could mean he could have most of May at home once we move in to our new place. Prayers for that would be great as we would just like to know either way now.
We got second opinion on car that broke down and it's going to cost a small fortune to fix so Dad in law has come to the rescue by lending us their clio for a few months. Will help loads whilst we work out what to do next. Also had a lovely lump sum of money from Ray's work which was a massive surprise and will help with sorting out house stuff. Well done Ray! He has been so amazing throughout this and really is an inspiration to me every day. It amazes me that he can still have a smile on his face and a laugh every day despite the madness of his life at the moment. We're just thankful we are near such awesome family support.
Not much else to report really. Hoping we're half way and are able to start thinking about the future from May onwards :)
We've been doing pretty well still. Managed to see some people this cycle which has been nice as otherwise it is just me and the family. Also saw some family over the last few weeks which Millie has loved too. Had v.low white blood cell count the last two cycles which is good as it means chemo is working, but also not great as basically have very week immune system for about 5 days. Drs were debating giving me injection of white cells to help boost mine but I managed to cope on my own and just was very careful with visitors and going out.
Symptoms have been ok, just the usual finger issues. The Dr has checked out the nerve damaged and warned me it may be permanent which is annoying as it is like extreme pins and needles at the tips of my fingers. It has just been an inconvenience so far but now they've started throbbing I'm hoping I can still get all the chemo as they may have to reduce one of the drugs even further to try and control the damage. Prayers that the throbbing stops would be great. Nausea was pretty normal and after a week was able to eat what I wanted, which is good as dinner is a bit of a mission the first week.
I should know tomorrow the results of my scan to see how the tumour is doing - we're hoping it is gone or reduced. Have found it unsettling waiting. I think it is partly as they may up my sessions to 8 in total if they are not getting it. I've been focusing on getting to May and not entirely sure I have it in me to do another 5 instead of 3. I had a CT scan last week and I've felt worried at times and not sure how to wait well. Think it was also partly because Ray had holiday but he spent 5 days away from us in our new house very tirelessly sanding the flooring in our new lounge. He did SO well, it was a tough job and he single handedly managed to get it done! But it happened to coincide with me feeling a bit rubbish so didn't help. Have felt a lot better now he's back home and I am feeling more prepared for tomorrow. Probably partly because I didn't have my usual splurge before I slept each night he was away so I was backlogged :)
We're still waiting to hear about critical care money which will help us plan the final cycles and whether we can afford for Ray to take some compassionate leave. It would be good to try and have some "normal" family time around Easter and as my last cycle is currently due to be 22nd April, it could mean he could have most of May at home once we move in to our new place. Prayers for that would be great as we would just like to know either way now.
We got second opinion on car that broke down and it's going to cost a small fortune to fix so Dad in law has come to the rescue by lending us their clio for a few months. Will help loads whilst we work out what to do next. Also had a lovely lump sum of money from Ray's work which was a massive surprise and will help with sorting out house stuff. Well done Ray! He has been so amazing throughout this and really is an inspiration to me every day. It amazes me that he can still have a smile on his face and a laugh every day despite the madness of his life at the moment. We're just thankful we are near such awesome family support.
Not much else to report really. Hoping we're half way and are able to start thinking about the future from May onwards :)
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